Friday, June 27, 2008

Room 397

They have moved Michelle out of the ICU unit and into her permanent room. She is located on the 3rd floor, in the Pediatric unit, room 397, at the North Shore University Hospital in Manhasset, NY.

Unfortunately, Michelle has been in quite a lot of pain since yesterday. The doctors took her off the PCA pump (self administered morphine trigger) Tuesday and started giving her 20mg of oxycodone. The oxycodone, however, made Michelle really nauseous so the doctors changed her over to liquid morphine, but that isn't really helping with the pain. Michelle has an extremely high tolerance to pain meds and the doctors are trying to step her down too quickly. Hopefully we'll get that all sorted out today.

Michelle is also having some difficulty with getting any real food into her system because of her tree nut and gluten allergies. The hospital has assigned a dietitian to help manage her meals, but there were a couple of mistakes yesterday that left Michelle with nothing to eat but a boiled egg and some grapes. I talked to the director of the nutrition and food services department this morning and hopefully they will do a better job today with her meals.

Michelle has continued to work very hard to rehab her neck muscles; pretty much every time she wakes, she does her exercises. She is making great progress with her range of motion. Unfortunately, it is very difficult for her to rehab right now until they get her pain under control.

Michelle got a chance yesterday to read all of your comments for the first time and was lifted once again by the support and encouragement in those words. She thanks you from the bottom of her heart for being there for her during this difficult time.


Anonymous said...

Hey Michelle'!!! I have to admit reading these updates do make me sad. I hate that you have to be in such pain. Hang in there, I promise it will get better. BTW - It is ok to complain, cry, get pissed, be moody, say bad words, etc. You are entilted and sometimes it helps. We love you so very much!!


Anonymous said...

Give em hell Aaron. I know you can do what it takes to get her taken care of!!!!!

Hang in there, Michelle!!!